Thursday, July 28, 2011

Be A Hero, Become A Donor

As many of you know, in April of this year, our son was diagnosed with a horrific disease called Adrenoleukodystrophy.  Without bone marrow transplant, or God's intervention, this diagnosis is terminal.  Our family is committed to raising awareness not only to our son's disease, but to also motivate our community to join the marrow registry.  While Bone Marrow Transplant is not an option for our son, we do know that over 70% of all patients in need of a life saving bone marrow transplant worldwide will need a stranger to give them life.  That stranger could be you or me.  But you can't "Be a Hero" without joining the registry and we will give you that opportunity at Adam's Benefit on Saturday, July 30 from 10 am - 6 pm at the VFW Post 10352 located at 16035 Waverly Drive in Houston or online with us at and click on "Be A Hero Become A Donor" in the pull down menu.

It is important to make sure you are a committed potential donor before you make the decision to swab your cheek, so please check out the Eligibility Guidelines at   first to see if you meet the health   and weight guidelines, as well as being comfortable with the methods of donation.  You can also find information at
Realize that the odds of matching a patient in need are slim, but imagine getting the call someday that you match a 5 year old boy or 40 year old mother of similar heritage to you.  Most people don't realize that you match a patient based on race and ethnicity, so the more people on the registry of different tissue types (heritages), the more matches we will have, hence the more lives saved.

Help us save lives in honor of Adam and be part of his legacy of giving HOPE to patients in need worldwide by joining the "DKMS Marrow Registry" today.  And tell a friend.

Please make sure you understand you are not joining the registry to save Adam.  He is not a candiate for a BMT.  When you sign up for the DKMS registry, you potentially can match a patient globally and unless you are prepared to say YES to saving them, we DO NOT want you to register.  Adam is the catalyst for this lifesaving endeavor!

Recycle Your Body Today....
Be A Hero, Become a Donor

Friday, July 15, 2011

I can do all things....

Through CHRIST who strengthens me!
Last last couple of weeks have been hard, emotionally and phyiscally. Everyday I have to force myself not to look ahead in the future but live for today and get as much out of Adam and Alayna as I can. I love my kids with everything that I have and there's nothing that I wouldnt do for them. I keep thinking why my son and why does it have to be that I can not do anything. Its killing me inside and Im screaming from the inside. (I started writing this last night and gave up because my emotions started stirring)
Each morning I read from a 365 Devotional and this is exactly I needed to read this morning:
DO NOT WORRY ABOUT TOMORROW! This is not a suggestion, but a command. I divided time into days and nights, so that you would have manageable portions of life to handle. My Grace is sufficient to you, but its sufficiency is for only one day at a time. When you worry about the future, you heap day upon day of troubles onto your flimsy frame. You stagger under the heavy load, which I never intended you to carry.
Throw off this oppressive burden with one quick thrust of trust. Anxious thoughts mender about and crisscross in your brain, but trusting ME brings you directly into My Presence. As you thus affirm your faith, shackles of worry fall off instantly. Enjoy My Presence countinually by trusting me at all times.
Therefore don't worry about tomorrow, because tomorrow will worry about itself. Each day has enough trouble of its own.- Matthew 6:34
But He said to me, My grace is sufficient for you, for power is perfected in weakness.-2 Corinthians 12:9
Trust in Him at all times, you people; pour our hearts before Him. God is our refuge.- Psalm 62:8
Ok I am just going to leave it at that I WILL have a great day and weekend. God bless you!
PS Adam and Alayna are doing great....they are doing their job fighting and driving this Mama crazy but I wouldn't change it for anything in this world! They are very excited about VBS next week!