Wednesday, November 30, 2011

Find a place inside where there's Joy, and the Joy will burn out the pain...

Two blogs in one day Im on a roll but this blog is more of an update on Adam.
2 weeks ago we Adam had his three month check up with Nuerology and of course had everyone smile and laughing because now mama has to tell all his jokes (sometimes its very embarrassing). Dr. Lotze really wants me to go get my blood work done because they seen something in Adams bloodwork that they havent seen before so they need my blood to study it also. Adam also got his G-Button which is alot easier and now he is able to take a bath!! Woohoo!! We went to the opthamologist also and she did confirm that Adam is blind. His eyes are good she said when you are blind the nerves in your eyes turn white Adams still has color but theyre pale as she looked deeper inside the damage was more intense. So basically his eyes are good its the part of the brain that controls that eyesight is already being affected with the ALD. There for a while I was very scared Adam lost a lot of abilities and a quick rate....but now I can say we have been steady and he is comfortable now. Even though he cant walk speak or see we have our special communication. We love on him, sing to him, play with him, scare him when he wants to play because his hearing has gotten so good he knows when your trying to sneek up on him! I love him Rollo loves him Alayna loves him Oriana loves him and Zoie loves and not to mention the other hundreds if not thousands that love him and lives Adam has touched. With the holidays I have found myself more emotional but Im hoping to a big blowout Christmas for my kids! Through all of it all I know my blessings and through out the day I have to look a little harder.
Love you all and God Bless!

Years One and Two!!

Sorry it has been way to long but here I go I left off with Adam turning one. Adam spent alot of time at his Mimi's while I worked he was a good kid never did we have to get onto him. He loved fruits and vegetables and hardly ate any sweets. Adam and his grandma planted Adam a tomato plant and Adam would always run out there to pick him a "mato". When Adam was about a year and half we went to see my mom in El Paso and rode on an airplane. Adam was so excited but once we got on the plane he was disappointed he didn't believe we were on a plane. While we were in El Paso Adam discovered Shrek and I could not get him to stop watching it was everything Shrek! So luckily on Adams 2nd birthday Shrek 2 party theme was out and that was the party! After Adams birthday I took him to see Shrek 2 and he was terrified i mean terrified because of the giant gingerbread man! I was hilarious but at the same time i was like my poor baby somebody bought him the movie and I remember the look on his face when he saw the cover he ran and threw it in the trash.
Here is my most favorite memory of all Adam loved foam like the kind from couches or the egg crates you put on mattress. He would walk around with it in one of his hands clinched tight and he would go on playing his normal routine never dropping it or letting it go. He would fall asleep with it in his hand and finally let it go then I would be able to throw it away...and guess what he did he did first thing he did in the morning, looked all over the blankets for it then when he couldnt find it he would get up and go get more somehow somewhere! I would find it in his ears in his nose so if I seen him and one of his hands werent closed I would chech his ears or nose and sure enough thats were it would be. I would even find it in is diaper sometimes. Oh and these pieces werent that big small smaller than the palm of his hand. Hope you enjoyed some memories of years 1 and 2!!

Tuesday, November 1, 2011

The Beginning.......

So many things have changed and let me just say that I hate 2011 and hate October 2011 even more! This has been a horrible month and Adam has been hospitalized twice. In this month Adam has gotten his feeding tube, has lost the ability to talk and his vision is even gone. We rely on us asking him questions and him squeezing our finger and even with that his ability to squeeze is getting minimal. He gets muscle spasms more frequently and has anxiety really bad now.
Many of you may know Adam and some may not...some may have knew him before his diagnoses and some of you may have not. I'm going to start from the beginning and from the first day I found out i was pregnant.
Here it goes hope you enjoy:
The day I found out I was pregnant with Adam was Sept. 25, 2001. As gross as this sounds I still have the home pregnancy test that I took :/ lol. I was young I was 18 and I was scared, excited and all the other emotions you feel when you first find out your pregnant. I had a very good pregnancy with Adam. My favorite food to eat was peanut butter and strawberry jelly with fritos in the middle...the grossest thing that I craved was dill pickle with snickers....YUCK! My due date was May 20,2002. I had a great pregnancy with Adam no morning sickness....he was always in my ribs though and always had the hiccups even after I had him he had the hiccups.
May 16th my water breaks and luckily I'm in the shower which was a good thing considering we were just at the mall. I felt really sick like I was getting the flu. It was about 5:15 when my water broke made it to Kingwood hospital around 6:30. I wasn't in any pain when I first got to the hospital but as the hours went on I started to feel the contractions. I got my epidural finally and on May 17th 2002 at 12:52 am I had a beautiful healthy 7 lb 8 oz 19 inches long baby boy ADAM NATHANIEL HUNTER at that very moment my life changed forever and I was the happiest mama in the world! He was so white I kept thinking I had an albino baby lol jk...Adam was such a good baby he hardly ever cried and I mean hardly ever. I remember one day he kept crying and crying and anything that I did would not help. I took him to the ER and it was only GAS can you believe it was only GAS. At that moment I was relieved but didn't know at that time Adam would always have gas and anybody that knows him knows that would become his SUPER POWER! He was my chunky monkey and his first year of life flew by so quickly. His first birthday was Winnie the Pooh and we had a big blowout. He began walking 2 days after 1st birthday. I was and am one blessed person to be this lil boys mama! I hope you enjoyed the 1st year of his life and stay tuned for the rest of his life story! Love you all and God Bless!