Wednesday, August 24, 2011

Physical Therapy Update

Today we went to Adams physical therapy and it went good for the most part. At first they wanted to put him in a walker and when they got it out and put him in it i started crying. This was not your normal walker this thing was huge and it had a belt looking thing that went around his waist and a thing that went in between his legs. To top it off it had straps on his ankles and it  looked like some kind of contraption.... I was like NO I will not have my son in that thing!! So then we started talking about the wheelchair and since its custom made it takes up to 3 months I was like are you kidding me 3 MONTHS!! So since it takes so long they will get him a loaner wheelchair and we should have it no later than Monday. They recommend home therapy since they are so far away from us...we will see how that goes since it is hard getting home therapy. They are also getting Adam a bath chair, a toilet chair that will be easier for me and Adam both.
The school has been very supportive and Adams teacher even called to see how he was doing, He has 3 teachers Mr.Hamm, Mrs.Rennalls and Mrs.Brenneman. He has a lot of friends in his class and for now the nurse has a wheelchair in his class for when they go to electives, lunch or recess. He loves it they were calling it his throne and calling Adam your highness!! LOL  I love this little boy so much!! Like I said before his walking has gotten worse and needs help walking...he has trouble sleeping and I'm waiting for the doctor to tell me how much Melatonin to start Adam out on...his speech has changed also and is now soft spoken...his left leg and left arm are not as responsive as his right arm and leg. last night as i was changing him i could not bend his leg and finally when i was able to he said that it hurt. I HATE SEEING MY SON LIKE THIS!! I'm also waiting to hear back from Dr.Lotze and the social worker to see about getting an appointment to discuss the future This is something that i dread doing but I know that it needs to be done sooner than later, Well this is all I can handle for one night as I can't stop crying and can barely see the keyboard. Thank you and God Bless!!
1.) Adam and Alayna had a great first day of school!
2.) Adam is perfectly fine with having a wheelchair and loves the attention that comes along with it.
3.) The school is doing all they can to make Adam as comfortable as possible and going to extreme measures to to help him any way they can.

Prayers Requests:
1.) Please continue praying for complete healing in Adams body.
2.) Pray for comfort and that he will start getting some restful sleep.
3.) That God will provide the right house for us that will make things easier for Adam and myself.
4.) Pray for strength, faith, love, wisdom and peace.
“Be JOYFUL in HOPE, PATIENT in affliction, FAITHFUL in PRAYER”~Romans 12:12

Sunday, August 21, 2011

One day at a time.....

As I put the kids into bed tonight I realize tomorrow is going to be a hard day for me. Adam will be in the 4th grade and Alayna will be in 1st grade. I feel like I did when Adam had his first day of kindergarten, I'm scared and worried about he is going to do. Both Adam and Alayna are excited to go back to school but this mama isn't. We had a good last weekend of summer vacation. Friday we went to lunch with LeeAnn at Johnny Carino's and Adam ate a big piece of lasagna. Then we went to the fire station where the kids got a tour and they even got to ride in the firetruck and spray the hose. It was a neat experience for all of us. We then went and got ice cream. Saturday we didn't do much until the evening we went to church for our fellowship and the kids went to childcare they played, ate pizza and watched a movie. Yesterday and today Adam has been exhausted and not himself. It breaks my heart to see him this way because I know thats not my son. We went to church tonight and Adam played dodgeball in the gym, him and Josh won!! As we got home tonight he was really tired he wanted a bath and wanted to go to bed.
I think nevermind I know this will be the hardest thing I will ever have to do. Like I said we are taking this one day at a time and living everyday happy. I thank the Lord everyday for my children and for Rollo. I lose count on how many times Adam says "I love you" to me, Rollo and Alayna! Adam knows that he is loved so much and that there is nothing that me and Rollo wont do for him. I wish that Wednesday would hurry up and get here so that way Adam can get his wheelchair and I will be more at ease with him going to school. As tomorrow comes I pray for all the children, parents and teachers as the kids head to their first day back to school! I will update the blog hopefully every night if not every other night. Thank you all and God Bless!!

Tuesday, August 16, 2011

Summer coming to an end.....

Wow I cant believe another summer is almost gone as I look back at our summer I'm really happy at all the memories and time we spent getting to do things. The way the doctors were talking is that by the end of the summer it wouldn't have been good. But here we are and although we have seen changes in Adam he has proven the doctors wrong. In June that's why we had the chance for Disneyworld and the doctors made it a rush wish we absolutely had an amazing time that we will remember forever! July we went with LeeAnn to her parents lake house and we also had a blast the kids rode jet skies, the boat and went swimming. They had a blast participating in the 4th of July parade. We also went to the beach house and stayed there for a couple of days! At the end of July the VFW held a benefit for Adam and I would like to thank them. Now I can focus on my family and not have to worry about what we need and how we are gonna get it!
Adam started occupational therapy yesterday but I don't think it will be very beneficial to him but we will see. Adam starts physical therapy on the 24th and the way the OT therapist was talking is that a wheelchair will be a lot safer for Adam. We will see what PT says.
I know many of you are wondering how Adam is doing....things have really changed and here it goes....first and foremost hes walking is the major thing that has changed. He walks but with assistance and that is why we are hoping for a walker or wheelchair. I now have to help him go to the bathroom, bathe, dress, sometimes feed him and watch him closely when he eats for the fear that he is gonna choke. He has had problems a couple of times with not being able to swallow. I noticed in the last week that his left leg and arm are not as strong as his right arm and his left leg is stiff a lot. The past couple of days he has started drooling without knowing.He also gets frustrated sometimes and gets emotional. On the other hand he is still smart as ever and remembers things from along time ago. He is still the same Adam and still very talkative and always tells me he loves me! He still loves to play with his friends and swim at Mrs. Rachels house! He is still able to play with his Star Wars guys his Legos not so much since they are small.
Thank you all for standing behind us during this difficult time and continuing to be with us on this horrific journey. We love you all and God Bless!