What if a thousand sleepless nights are what it takes to know You're near what if trials of this life are Your mercies in disguise!
I'm like whoa I know I haven't updated Adams blog in quite sometime and I'm sorry things have really been well very busy!
First and foremost I give thanks to our Mighty God for everyday blessings!
As of today Adam is completely in a wheelchair and cant walk at all without assistance. I have to carry him to and from the car because our house is not handicap accessible and that is why we are MOVING and Adam is very excited! We also have compassionate care hospice now and honestly when the doctors recommended hospice I was like ummm NO!! I personally did not make the call for the fear of the word HOSPICE....that word scared me more than anyone could imagine! The social worker from the hospital actually made the call and had them contact me. With compassionate care Adam gets the extra benefits of having a nurse and a social worker that comes to our home. They will be a bridge between me and the doctors and save us trips to the hospital if needed. They have only been in our life for a week and have really been a blessing!
Today we went and had a swallow study done on Adam and he did relatively good and there was no food or liquids getting into his airway. PTL! He did have some pooling in his throat that could possibly get into his airway but as of right now its nothing to worry about. Adam cant have certain foods and they recommended that we not give Adam meats,popcorn,nuts etc. that require a lot of chewing he does not have the ability to chew and grind his food like we do and that is a choking hazard. We will be waiting to hear from Dr. Lotze to see what he thinks and to find out when we will be getting a g-tube. I'm going to have to work on finding some foods that will be easy for Adam to chew and swallow. He can no longer drink from a cup or a straw and he drinks from a sippy cup without the flow guard as of right now he is doing ok with that.
Adam's speech has changed drastically and its getting very hard for him to speak and it often frustrates him. It breaks my heart to see my baby go through this. Some days are better than others.
Enough with all of the above Adam is doing very well in school and is enjoying going everyday! I'm so grateful for the teachers and nurse and Newport Elementary!
He still has that amazing sense of humor and is always laughing.
Last Tuesday Adam had a King Of The Day pool party that Kailyn and 4 other girls swam and made sure he had a special evening after school. He enjoyed it very much. He also got to go on his first "date" with his girlfriend Kailyn and we all went out to eat at his favorite restaurant Charming Cafe!
With everything going on I'm so thankful for the family and friends that we have and that we have made. Adam has touch so many lives and he is such a joy in my life as well as everyone else. Thank you all for the prayers, thoughts and support!